PCI – Primary Health Care Informatics


Main Objectives

The group aims to be a focus for people to from a primary health care background, or conducting research into primary care to come to EFMI conferences. We aim to put on events, generally workshops at EFMI meetings and use the outputs from these to create a submission to the following years IMIA Yearbook for Medical Informatics. We work in close collaboration with national and the IMIA primary care working groups.

  • The aim of the group is to promote and develop primary care informatics as a specialism within health informatics [1].
  • The group aims to put on workshops, and where feasible visits to primary health care facilities, at EFMI conferences.
  • Increase the peer review primary health care informatics literature.
  • Our three current themes are: (1) How to model research studies based on routinely collected data [2]; (2) Ontologically rich approached to case finding in routine data [3]; (3) Developing linked ethics and privacy frameworks.  (4) Methods for the direct observation of the use of technology in the clinical consultation [4]..

Please contact the working group chair if interested in participating contact Simon de Lusignan: simon.delusignan@phc.ox.ac.uk 


Primary Health Care Informatics Working Group aim and objectives for the meeting:


The aim of the primary care informatics working group (PCIWG) workshop will be to understand the potential benefits and possible unintended consequences of the technologies being presented in the Village of the Future.  Additionally, we will explore the potential impact of these technologies on the content of the computerised medical record – its volume, content and scope – as these technologies are introduced.


  1. To learn from the experience from and WG members how have experience of innovative practice in the five pillar areas: (1) Technological Interoperability, (2) Semantic Interoperability, (3) Human Factor Engineering, (4) People’s Priorities and Expectations, and (5) Societal Incentive Framework.  WG members will be invited to submit two PowerPoint slides about a cutting edge area of informatics.
  2. Critically appraise the demonstrations available in the Village of the Future: What are the benefits for primary care, what might be the unintended consequences.  Volunteers will be asked for in advance of the workshop to explore each theme/pillar.
  3. Seek example outputs from each theme/pillar how might these have greatest impact on primary care in the future.  In particular:  What types and volume of data and information might be generated that might need to be stored in practice or locality computerised medical record systems; What types, and content of data might be provided direct to patients or be placed in personal electronic health records?
  4. Plan dissemination activities, in particular the working group’s contribution to the Yearbook of Medical Informatics, and a paper in Informatics in Primary Care.

Contact Simon de Lusignan simon.delusignan@phc.ox.ac.uk

Recent Activities

  • We are planning a workshop at the EFMI STC in Cardiff September 2022.  Please contact Simon de Lusignan simon.delusignan@phc.ox.ac.uk for more details. 
  • Workshop focus groups joint with IMIA Primary Health Care Working Group – the outputs is published in the IMIA working group.

Relevant Publications:

[1] de Lusignan S. What is primary care informatics? J Am Med Inform Assoc. 2003;10(4):304-9

[2] de Lusignan S, Pearce C, Kumarapeli P, Stavropoulou C, Kushniruk A, Sheikh A, Shachak A, Mendis K. Reporting Observational Studies of the Use of Information Technology in the Clinical Consultation. A Position Statement from the IMIA Primary Health Care Informatics Working Group (IMIA PCI WG). Yearb Med Inform. 2011;6(1):39-47.

[3] Liyanage H, Liaw ST, Di Iorio CT, Kuziemsky C, Schreiber R, Terry AL, de Lusignan S. Building a Privacy, Ethics, and Data Access Framework for Real World Computerised Medical Record System Data: A Delphi Study. Contribution of the Primary Health Care Informatics Working Group. Yearb Med Inform. 2016 Nov 10;(1):138-145.

[4] Hinton W, Liyanage H, McGovern A, Liaw ST, Kuziemsky C, Munro N, de Lusignan S. Measuring Quality of Healthcare Outcomes in Type 2 Diabetes from Routine Data: a Seven-nation Survey Conducted by the IMIA Primary Health Care Working Group. Yearb Med Inform. 2017 Aug;26(1):201-208. doi: 10.15265/IY-2017-005. 

[5] Liaw ST, Liyanage H, Kuziemsky C, Terry AL, Schreiber R, Jonnagaddala J, de Lusignan S. Ethical Use of Electronic Health Record Data and Artificial Intelligence: Recommendations of the Primary Care Informatics Working Group of the International Medical Informatics Association. Yearb Med Inform. 2020 Aug;29(1):51-57. doi: 10.1055/s-0040-1701980. Epub 2020 Apr 17.

[6] Liaw ST, Kuziemsky C, Schreiber R, Jonnagaddala J, Liyanage H, Chittalia A, Bahniwal R, He JW, Ryan BL, Lizotte DJ, Kueper JK, Terry AL, de Lusignan S. Primary Care Informatics Response to Covid-19 Pandemic: Adaptation, Progress, and Lessons from Four Countries with High ICT Development. Yearb Med Inform. 2021 Aug;30(1):44-55. doi: 10.1055/s-0041-1726489. Epub 2021 Apr 21.

[7] Kuziemsky C, Liaw ST, Leston M, Pearce C, Jonnagaddala J, Lusignan S. Towards Equitable and Resilient Digital Primary Care Systems: An International Comparison and Insight for Moving Forward. Yearb Med Inform. 2022 Jun 2. doi: 10.1055/s-0042-1742502. Epub ahead of print. 

  If you want to become a member of the PCI Working Group, please contact with the Chair of the Working Group