FAIR – FAIR data in Health Research Performing Organizations (HRPOs)

Chair:

  • Alicia Martínez-García (ORCID 0000-0001-5614-7747), Group of Research and Innovation in Biomedical Informatics, Biomedical Engineering and Health Economy, Institute of Biomedicine of Seville, IBiS / Virgen del Rocío University Hospital / CSIC / University of Seville, Seville, 41013, Spain.

Co-Chair:

  • Matthias Löbe (ORCID 0000-0002-2344-0426), Institute for Medical Informatics (IMISE), University of Leipzig, Leipzig, 04107, Germany.

 

Main Objectives:

The EFMI WG on FAIR data was founded in 2022. It is a place for people interested in the scientific research related to the FAIR principles [1], more specifically:

  • To promote FAIR data in Health Research Performing Organizations (HRPOs) promoting tools, processes (e.g. [2]), and standards to raise awareness and advance education on FAIR in the EFMI community.
  • Develop an HRPO maturity model for the adoption of the FAIR principles that can be adopted as an accreditation model for HRPOs, in line with the RDA FAIR data maturity model [3].

[1] Wilkinson, M. D., et al. (2016). The FAIR Guiding Principles for scientific data management and stewardship. Scientific data, 3, 160018. https://doi.org/10.1038/sdata.2016.18

[2] Sinaci, A. A., et al. (2020). From Raw Data to FAIR Data: The FAIRification Workflow for Health Research. Methods of information in medicine, 59(S 01), e21–e32. https://doi.org/10.1055/s-0040-1713684.

[3] RDA FAIR Data Maturity Model Working Group. (2020). FAIR Data Maturity Model: specification and guidelines (1.0). Research Data Alliance. https://doi.org/10.15497/rda00050

Relevant Activities:

  • Work in progress.

Future Activities:

  • Work in progress.

If you want to become a member of the FAIR – HRPOs Working Group, please contact with the Chair of the Working Group